A Heart to Treasure

Best of friends!

2009-12-03T18:08:00.000-08:00

While Mom was in the hospital when baby Marcus was born, Gerad stayed at cousin Gesina's house!

..doing things he normally is not allowed!

...sharing his favorite items!

... and just having a wonderful gut time!

" I'll give you your soother...

...if you give me cheerios! "

Oh, the BLESSING OF CHILDREN!

Enjoy them, love them as it it were your very last day with them!

All dressed up!

2009-12-03T14:25:00.001-08:00

Urreker Gerad

Moet dit nou allemoal...?

Geen belang...

Mag ik nou noar buuten?

Traditional Urker costume worn on special days such as 1st birthdays!

Do I look nice now, Mom?

Hee, there kitty!

Oh, how I love you mom!

Ok, one more picture for Opa...!

It's a boy!

2009-11-21T19:37:00.000-08:00

Marcus Pieter Neels

born today, November 21, 2009

at 2:20 p.m.

Weighing 8.1 lbs!

All is well!

Two sweet cousins!

2009-11-04T12:30:00.000-08:00

This was the best pictures we could get because they were both rearing to go and would hardly sit still for pictures! Soon Gerad hopes to visit (when his mom needs to go to the hospital) and we hope to get some better pics then.

Did you notice Gerad got a haircut?!? His first one!

One Year Old!!!

2009-10-01T04:45:00.000-07:00

Happy 1st birthday Gerad!

Our miracle boy!

Gerad is doing well. Crawling and walking around furniture and keeping his momma busy. He likes his food, and Hannie makes sure he gets lots of it! When Hannie asks him what the cow says, he'll say 'mooo'.

For his birthday his dad had put a sign at the road which read; HONK 4 GERADS BIRTHDAY. And folks did honk, from cars, to trucks, to revved up pickups to dump trucks...they all made a joyful noise in honour of this celebration!

WE LOVE YOU GERAD!

GoNe FiShInG WiTh DaDdY

2009-08-13T04:35:00.000-07:00

I know these pictures are from a few months ago, but they are enjoyable just the same!

Marvin, Hannie and Gerad recently went to Beautiful British Columbia to visit family and friends. Even though Gerad wasn't quite himself, I am sure it still was a blessing to have him around getting everyone attention, which he is very good at!

Soon enough, he will need to share that attention, as there will be another wee one to love and hold and to go fishing with! He will be thrilled, as is tante Bou already!

~~~~
O taste and see that the LORD is good:

blessed is the man that trusteth in him.

Psa 34:8

New Pictures!

2009-07-25T17:40:00.000-07:00

:: Lekker bai z'n va ::

:: watching the ponies... ::

:: ...a favorite past time ::

:: "hurry, hurry! We need to go, or we'll be late... Marv, can you get Gerad dressed?" Sure, Marvin gives Gerad a new diaper and puts on his pants~Hannie later discovers his pants inside-out!

:: as soon as he is seated in his highchair, up goes his feet and his toes lock into place! ::

:: book worm ::

Thankfully NO surgery!

2009-06-05T18:33:00.001-07:00

The doctors were very happy with Gerad and his diaphram is much better. Things were good too at his regular check up, so Hannie is relieved...we all are!

Surprise! Surprise!

2009-06-03T04:10:00.000-07:00

More pictures and a small update on Gerad!

:: He LOVES his exersaucer ::

:: and loves to watch his momma work around him in the kitchen. ::
He is learning that even if momma disappears a few moments out of sight, she WILL be back!

::His eating has picked up, BUT he detests chunky foods. ::

...the mushy stuff is what he likes.

:: LOOK! LOOK! His first tooth!! ::

It is only these last two weeks, maybe three by now, that Hannie has really felt she is finally living the dream of having a baby and enjoying the baby. Gerad is now 8 months old and he is happy, content (all day long) and a joy to have. He likes to play in his playpen, rolling around and chewing on whatever he can find. He uses the cutest giggle to get your attention, and it is hard to ignore him once he starts.

Tomorrow he goes in for an ultrasound on his diaphragm area. It got damaged during his last surgery and because of the coughing that had picked up after that, it couldn't heal the way they had hoped. If it does not look healed, they will do surgery to repair it, but since his cough has been gone for about two weeks now, I am thinking it has had time to heal and things will be alright. That is my prayer.

Marvin and Hannie have given me the OK to update once in a while again, if I have time (they think I am busy) so I will gladly do that. I know it makes the distance a little more bearable for you all and I am honoured to be at your service and to post about our dear little harte diefje.

All because of JESUS.

Thank you!

2009-05-05T04:56:00.000-07:00

To my lieve Opa's, Oma's, aunts, uncles, cousins and friends

First of all, I'd like to give tante Bou a big hug and an even bigger thank you for putting so much effort, time and love into keeping everyone updated. I really like it that you did that! Also for me to see when I'm big like daddy. I'm sure you were quite busy with those....can I say monkeys....of yours! (that is what they call me) Yet whenever there was news, even no news, just pictures, you would take the time to post it all. Thanks so much, tante Bou!

Hey everyone else! I didn't forget you! You all get a big thanks too for supporting my daddy and momma so much. I could just tell that they appreciated every visit, meal, phone call, card, hug and prayer very much. And the clothes and toys I got! I love em! Thanks!!

psst...At night when they thought I was sleeping (please don't tell...) well...I'd just have my eyes closed and I'd hear them say things like..."It's amazing how giving and caring people are. Even ones we don't know very well."

It's been a month since my operation and I'm slowly starting to become myself again. I sit in my lay-z-boy most of the time. It keeps me that calmest cuz I'm not allowed to move much for six l-o-n-g weeks. When momma puts me in the playpen I roll almost right away, and then momma rolls me back before I start crying and with that even more pressure would be on my chest. My scar looks great, but it's the bone inside we're worried about. It has to heal 6 weeks for sure, otherwise it could burst open. I can't be lifted under my arms, either. So always I need to be picked up like a little baby, under the bum and behind my neck.

After a night of keeping momma awake (not on purpose, I promise!) by coughing and wanting my soother, daddy gets out for work, and gets me and puts me on his spot, beside momma! I absolutely love it!

During the day I keep my momma on her toes cuz I like being able to see her. She says she doesn't have to worry about going on a diet with me around! =) (she still tells me she loves me very very much, so I am not worried at all. Should I be?)

Anyways, when daddy gets home I'm usually already in my high chair waiting for supper. When I hear his voice, I stop playing and listen with big eyes 'till I see him and then...and then...I hoot and holler and kick and kick and laugh and smile from ear to ear. Me and him, we love each other! LOTS!

K, thanks again everyone! Tante Bou will update now only once in a while, like on my birthday and next operation. Also thanks to those who touched me gently with love in the hospital. I love you all! Expecially my Opa's and Oma's.

From Gerad Neels

~~~~~~~~~~~~~~~~~~~~~~~~~

I, tante Bou, have started a blog about our blessed home life! Come visit us at http://melodiesofourhome.blogspot.com/ where we look forward to sharing with you the joys and blessings of family life, be it in harmony, or sometimes out of tune!

aPoLoGiEs...

2009-04-30T04:13:00.000-07:00

My apologies for not updating. We hope to post some closing remarks and picture soon and that is what I had been waiting for, therefore the delay. Sorry.

Gerad has had a bad cough since he came home from the hospital. At first you could tell it hurt him to cough as he would cough ever so carefully. His eating habits were not picking up, but after a few garlic poultices applied to the bottom of his foot, he started eating good again and his lungs sound so much better now. He still has the cough which is keeping him up at nights and it also gives Hannie sleepness nights. She really needs a good nights rest, and is hoping that comes someday very soon.

Stayed tuned for pictures to come...

Dear Gerad,

2009-04-07T19:25:00.002-07:00

Hello, sweet boy!

Do you remember at all when Tia Michele visited you last week? She sat by your bed for a while and watched you sleep, and breath, and rub your itchy nose...

Well, that was when she was hoping to have her baby very soon and was wishing you and her would go home from the hospital on the same day. It happened a little differently though. The day you came home, was the day your new little cousin was born! So you beat her home, but I am sure Tia Michele is ever so happy about the way things went! Last night as Tia Michele and Uncle Albert were reading this blog all about you, her water broke and that was a sure sign that her baby would come sometime real soon. This afternoon, as you were being discharged from the hospital, little Miss Eva was born. Isn't that special? This has been a very happy and blessed day for our family. Makes my heart fill right up to the brim, and overflow, with thankfulness to God who takes such good care of us! He is so good!

As your mom and dad were driving you home from the hospital, they remembered that it was almost exactly a week ago that they were allowed to see you again after your surgery. So much has happened this past week and we are amazed. God has heard our prayers and blessed us. ALOT!

This afternoon when your mom told us that you maybe, maybe you had to stay longer in the hospital because you have a cough, we prayed that you would be discharged anyways, and when your cousin Pieter heard that you were on the way home, he was so happy that God had answered that prayer too!

We hope to come visit you tomorrow. In the meantime, have a very good sleep in your very own bed again and be nice for you momma and sleep all nicely through the night. Ok?

Love and gentle hugs from tante Bou

mwaah <-----a kiss for you!

Delighted, indeed!

2009-04-07T09:14:00.001-07:00

The blessed words are out....The echo results were good and they are

going home

at around three this afternoon!!!!!!!!!

Oh, and Hannie is still very excited about having to give NO MORE NEEDLES!!!!!

What a blessed day!

The Love of Grandparents...

2009-04-07T08:48:00.000-07:00

:: ...and the goodness of God ::

This morning Gerad was sedated so they could do an echo. Now Gerad is resting and Marv and Hannie are waiting for the results on the echo and the discharge summary. Gerad is acting more and more like himself. Smiling more, eyes wide open, taking everything in and playing with his toes!

So, if they echo shows good results....THEY WILL BE COMING HOME!!!!!!!

The LORD on high is mightier than the noise of many waters,

yea, than the mighty waves of the sea.

Psa 93:4

Thankfulness

2009-04-06T07:40:00.000-07:00

Today has been good, so far. Yesterday, however, was a rough day as he cried and cried. Overnight he had two big dirty diapers and is much calmer now. The oxygen is off and if he can maintain his oxygen levels on his own all day, they can come home tomorrow! His feeding tube came out this morning, so now he is just on the monitor.

... pray one for another, that ye may be healed.

The effectual fervent prayer of a righteous man availeth much.

Jas 5:16

Good News!

2009-04-04T08:00:00.000-07:00

Yesterday Gerad was moved upstairs to a step down room. It has two nurses attending to four children. Marvin and Hannie got to hold him yesterday and they were ever so excited! They had to tube feed him last night as he seemed to have a stuffy nose and therefore had trouble breathing.

This morning he was awake and calm for a while just looking around. They held him again and next time he wakes up they get to take him in a stroller.

Chest tube and pacemaker wires might be coming out today! Hopefully neck line tomorrow; it's in there just in case they need it for bloodwork or medication.

He still has the oxygen tubes in his nose and they are trying to wean him off, but his oxygen level keeps dropping. That could be because of his lazy lung.

Marv and Han did have to go to a hotel last night since there was no room for them in the hospital. Hannie said that it is nice either way. When they stay at the hospital they are close to Gerad, but when they go to the hotel, they both get a good nights rest.

God is Good and He continues to show how fearfully and wonderfully we are made. Our bodies are able to go through so much, yet keep right on fighting to heal and recover. Yes, God is Good!

Texting with Gerad..

2009-04-03T10:57:00.000-07:00

Hi Tante Bou,

I'm doing good. I might be moving today! Momma spent lots of time with me so she couldn't reply. The I.V. from my other hand is out too and I got to drink a little more. Love you

Dear Gerad,

That is so heart warming to hear, little man! Are you awake more today?

Gerad: No not really. The nurses like to keep me a bit sleepy so I don't squirm, kick and wiggle my lines loose. I'm on my side now and I like that!

Tante Bou: Ok, be nice for the nurses! Let me know when you move up stairs. I love you too!

Our visit with Gerad!

2009-04-03T06:26:00.000-07:00

Gerad is taking steps forward in healing! His catheter is out, the bandage off his wound, and he himself is responsible for taking out the I.V from his right hand. The left hand they re-enforced quite well, so he can't take out that one. He had a bag of ice on his head again to help lower his slight fever. (38 point something) The two white rolls you see on his belly is a pacemaker hook-up, just in case they need it. His chest drain has less fluid coming from it and today they were looking to graduate him upstairs.

Once in a while he wakes slightly and he will kick his legs and rub with face with giant strokes to ease his itchy nose. It is quite a sight to behold. Hannie will talk to him quietly, tell him to be gentle and pat his diapered bottom.

:: With Tia Michele, who is hoping to have her baby soon! ::

His right lung is what you can call a 'lazy lung'. It happens more often when babies come off the respirator and the lungs have to start working on their own again. It does inflate completely, but then does not deflate completely. Most often it heals on its own, otherwise with therapy.

:: Some colourful toys at the foot of his crib ::

He was sleeping most of the time we were there because of the last dose morphine he got.

After that they would be giving him tylenol. They bottle feed him again, but only a minimum amount. He loves it as it gives him a filled up feeling, instead of being tube fed.

A note to all the lurkers: take a moment and leave a comment! It is easy to do and Marv and Han would LOVE it!

Update Everyone!

2009-04-02T07:36:00.000-07:00

~an ultrasound was just done. His right lung isn't working as hard as his left lung. We won't hear results till later this afternoon and they seem quite concerned.

~He had a good night sleep, and his oxygen cap is now off.

~He is on half the mophine so he is awake more and more. Today they hope to wean him off the morphine.

~When Marvin and Hannie came in this morning he was sleeping, but awoke when they started talking. He opened his eyes and looked at them. It was a very special moment for them all!

~He loves his green coloured hankie (as you can see on the pictures) and loves it even more when Hannie or the nurses rubs it against his face. He can't play with it yet as his hands are tied down so he won't pull on the wires and tubes.

:: Opa Bos ::

:: the oxygen cap is now off ::

:: coffee break with Uncle Klaas ::
(I should ask Marv how many times he has won
since it is Roll up the rim to win!)

'Til the storm passes over, 'til the thunder sounds no more,

'Til the clouds roll forever from the sky,

Hold me fast, Let me stand in the hollow of Thy hand;

Keep me safe 'til the storm passes by.

Pictures of our Precious boy!

2009-04-02T04:52:00.000-07:00

:: Momma Hannie and her precious bundle ::

:: He likes sleeping in this position. Nurses will heist him up,
but he will wiggle his way like this again. ::

:: wearing an oxygen mask to aid in healing

his throat after the ventilator came out ::

More steps forward...

2009-04-01T19:02:00.000-07:00

Here is an update:

~doctors very happy with Gerad's progress
~he is waking up more and more and opening his eyes!
~he kicks the nurses away when they try to do something
~he is off the ventilator
~they are going to feed him some milk tonight
~maybe tomorrow Hannie and Marv get to hold him
~morphine is keeping him sleepy, and
~all the nurses love him!

In the morning I hope to have some up-to-date pictures!

Goodnight everyone!

Steps forward...

2009-04-01T10:09:00.000-07:00

This afternoon they want to take out the ventilator. It is already on a low setting, so Gerad is breathing on his own.

He woke up very irritable and he started kicking his legs~~ a welcome sight for his parents!

Our dear sweet Gerad, sleeping

2009-04-01T07:01:00.000-07:00

This morning at 8:00 Gerad received his last dose of muscle relaxant. They will see how he does when he wakes up (about 10:00). He is expected to be irritable and have high blood pressure, which is normal.

Hannie and Marvin were able to sleep at the hospital again last night. That is so nice, since they can be ever so close to Gerad and go visit him whenever they want.

Pray for them. Seeing their bundle of joy laying like this is tough.

There shall be showers of blessing

This is the promise of love;

There shall be seasons refreshing,

Sent from the Saviour above.

Showers of Blessing, showers of blessing we need:

Mercydrops 'round us are falling,

But for the showers we plead.

Another quick update...

2009-03-31T19:17:00.000-07:00

here is another update from Hannie via texting:

7:30 p.m. We finally seen him. He's still laying so so still. I know he has to but it's so hard to see him not move. I hope And pray he recovers REAL quick!

Doctors are very pleased with how the operation went.

I hope to talk to Hannie in the morning and will update you all more specifically.

He maketh me to lie down in green pastures:

he leadeth me beside the still waters.

Psa 23:2

update...

2009-03-31T13:38:00.000-07:00

Here is what Hannie just texted me:

Operation is done!
Just waiting for bleeding to stop which is normal and can take an hour or longer. Then he can be closed. :-)

Gerad just picked up for surgery...

2009-03-31T10:04:00.000-07:00

:: holding the needle... ::

This morning Hannie's wish came true....she and Marv will no longer need to give Gerad his needle twice a day to keep the shunt open. Hannie is SO HAPPY!!

As of 1 p.m., someone was going to pick up Gerad from the OR playroom where Hannie and Marv were waiting and take him into surgery! Hugs to you, Gerad and may God Bless the surgery! Lots of love from tante Bou!

Little delay..

2009-03-31T06:23:00.000-07:00

Gerad was first going to have surgery this morning, but it has been put off till this afternoon. He needed to fast since 2 a.m., so he is getting extra hungry now, but still doing ok. The surgeon was very pleased with Gerad and asked Hannie and Marv if they wanted to participate in a study. They are still thinking about it. They would take various samples of skin , blood samples as well as samples during his operation.

Looking at other sick children around them, Hannie can't help but feel very blessed.

It will be a long day as we wait. Pray for Marvin, Hannie, Gerad, the doctors, grandparents and all who are involved with Gerads care.

Stay busy...

God is good, all the time.

Bi-Directional Glenn Summary

2009-03-30T18:52:00.000-07:00

I took this from http://www.severinbrenny.com/bidirectional_glenn_operation.html to give you a bit of an idea what will be happening tomorrow.

The bidirectional Glenn procedure is the surgery used to prepare the heart for a Fontan procedure. It is a surgery in which a detour (shunt) is created from the aorta to the pulmonary artery. The surgery is performed on infants and young children who are born with a congenital heart defect that reduces the amount of oxygen-rich blood circulating throughout the body. These infants often show signs such as a bluish tint (cyanosis) to the skin, lips, fingernails and other parts of the body. Although a successful procedure will improve immediate signs and symptoms of the underlying heart defect, the procedure does not correct the heart defect. Other surgeries are usually necessary in the future to repair the defect itself. The surgery involves an incision in the chest, but it is not an open-heart surgery. Parents can expect their infant to remain in the hospital for about three to six days after the surgery.

Bidirectional Glenn Shunt
What is the Fontan modification called the Bidirectional Glenn shunt ? Although not exactly a Fontan operation, a bidirectional Glenn (BDG) shunt is similar to it - and is called a type of "Partial Fontan" operation. The bidirectional shunt is performed by connecting the superior vena cava (SVC) to the right branch of the pulmonary artery using fine sutures, and dividing or tying up the pulmonary artery. Now, venous blood from the head and upper limbs will pass directly to the lungs, bypassing the right ventricle. The venous blood from the lower half of the body however will continue to enter the heart. At a second operation, the lower body venous blood will also be diverted to the lungs, thus creating the "complete" Fontan circulation.The bidirectional Glenn shunt is preferred in very small babies - below 2 years of age - in whom the lung vessel resistance is still quite high, and in borderline cases with abnormal pulmonary arteries. While avoiding the risk of failure of a complete Fontan operation, it also partly relieves symptoms. If all is well after the Glenn shunt, and the lung vessel resistance is low, a change to complete Fontan is possible. Otherwise, nothing further is done.

Pre-Op Day

2009-03-30T13:50:00.000-07:00

it's the day before. Very early this morning Marvin and Hannie made their way to the heart of Toronto for Gerad's pre-operation day. They did the standard testing such as ECG, x-ray and bloodwork. Gerad was overly tired as everytime he would be sleeping, he would need to be woken up for the next test. Hopefully he gets some good winks till the morning and we hope Hannie and Marv do too. I will update you all as I know more and as time progresses.

Stay tuned...

The countdown is on...

2009-03-16T17:38:00.002-07:00

The next scheduled surgery date is set for Tuesday, March 31.

Although Marvin and Hannie are looking forward to getting it done, and Gerad needs it because he is growing and his body needs more oxygenated blood, it also is with heavy hearts. To go through it all again, knowing all the pains, fears, worry. What encouraging to know that there is a God who stands above all, Who can make all things well!

Dear Marv and Hannie, we are praying for you as you face the days ahead. May your hearts be filled with peace and courage, relying on our Heavenly Father, Who sees and cares. Though strong winds may come and the waves are high; may your anchor be secure in the Rock. Be strong for Gerad and for each other and know we are lifting you up in prayer!

Geef de Heiland 't roer in handen van uw aardse levensschip.

Hij zal veilig u doen landen, Hij kent elke rots en klip.

Zij uw scheepje groot of klein laat de Heiland stuurman zijn.

Hoe ook stormen mogen woeden laat het roer stil in Zijn hand,

Hij zal in 't gevaar behoeden, Hij brengt veilig u aan land.

Beeft g' ook al van angst en pijn laat de Heiland stuurman zijn.

Blijf toch rustig Hem geloven,richt bij 't felste stormgedruis

't hart omhoog, het oog naar boven daar bracht Hij reeds velen thuis.

Hoe ook alles donker schijn laat de Heiland stuurman zijn.

Veel gevaar bedreigt het leven maar het grootst is al 'k niet stil

alles aan Hem overgevenen ook zelf nog sturen wil.

Daarom Heiland houd mij kleinen wilt Gij maar stuurman zijn.

More pictures...

2009-03-16T17:38:00.000-07:00

:: Gerad and Gesina ::

This chunky boy now weighs

17.14 lbs!!!

At the hospital...

2009-03-13T19:44:00.000-07:00

:: ready for the echo to begin...

moments later he got an oral sleeping tonic ::

:: resting after the procedure was done ::

On Monday, March 16, doctors plan to get together to discuss when Gerad's next surgery will take place. In the meantime they were very pleased with Gerad's growth and development. Fifty percent of Hypo Plastic Left Heart patients grow new blood veins in the heart after the Norwood Surgery, which means more blood for the tiny heart to pump. During the procedure he just underwent, they clamp off these veins to disable further growth. With Gerad there was NO new growth. That means they didn't have to do more work on him and it shows that God does care. He cares even about the tiny details!

quick update...

2009-03-12T19:16:00.000-07:00

Marv, Hannie and Gerad are HOME! A doctor and nurse said that Gerad was a good Norwood Star because he is doing so well and is so chubby. His IV line had to be inserted in his foot because his hand had too much padding!

That is all for now folks!

I hope to talk to Hannie in the morning and will update more then.

Update!

2009-03-12T08:58:00.001-07:00

At ten this morning Marv and Hannie could see *~Gerad~* and hold him.
He wasn't allowed to have milk yet, so he drank 6 oz of sugar water.
Everything went well and looked very good. One artery was narrowing, but nothing to worry.

During the procedure they said they would take pressures from his lungs and heart, take pictures and tiny blood samples from his heart.

The Doctor should get in touch with them soon to discuss things further.

And momma Hannie is feeling better today!

Will update when I know more!

Update

2009-03-11T16:02:00.000-07:00

Testing went good today and the procedure is scheduled for tomorrow morning. During his echo Gerad was given something to sleep, so he would lay still. After he woke up he as jolly as can be. He laughed and giggled, coo-ing and kicking his feet with excitement.

Hannie is sick and we hope and pray she gets a good night sleep and she feels better in the morning. They will most likely have a computer available for use during their waiting time while Gerad is undergoing the procedure. Do take some time to send them a message or leave a comment. I am sure they will greatly appreciate it!

You can email them at hannie_bos@hotmail.com

God's will is exactly what we would choose

if we knew what God knows.

~~~~~~~~

Every experience God gives us,

every person He puts into our lives,

is the perfect preparation for the future that only He can see. ~Corrie ten Boom

ONLY TRUST HIM

The fight for joy is the struggle to trust God with the burdens of life. It's a fight for freedom from worry. It's a fight for hope and peace and joy which are all threatened by unbelief and doubt about God's promises. ~John Piper

Then shalt thou call, and the LORD shall answer;
...the LORD shall guide thee continually, and satisfy thy soul in drought, and make fat thy bones: and thou shalt be like a watered garden, and like a spring of water, whose waters fail not. Isa 58:9, 11

Testing Day...

2009-03-11T05:05:00.000-07:00

Marvin, Hannie and Gerad left early this morning to go to Toronto for Gerad's testing. Gerad was not allowed to eat since 5 a.m. since they wanted to put him to sleep while they do the echo, which they wanted to do shortly after eight o'clock.

If all tests look well, with no sign of infection or cold, they will procede tomorrow with the procedure to take a camera into his heart via his groan, and see what it looks like. From there they decide when he will need his next surgery.

Most nights he wakes up and he has no idea how tiring this is for his momma. Last night he was a good boy and slept from 10 o'clock until it was time to wake up to go. What a good boy! And what a small relief for his momma!

:: there is nothing better than a gebakken vissien van Opa! ::

:: oh, so tasty ::

:: je zukken je vingers ur bai op ::

( Gerad sucking on a delicious piece of fried fish, fried by his Opa)

Giggling Gerad

2009-03-07T13:34:00.000-08:00

This week Gerad had an appointment with his regular doctor and she was very pleased. He is above average with his weight gain. After all the sniffles and his bout of pneumonia, she said it's the best she has heard his lungs in a long time. Much reason for thanksgiving! God is Good!

Daddy Marvin just assembled his highchair and he was enjoying it while I just talked with Hannie on the phone. My heart swells with gratitude for all His tender mercies!

Then was our mouth filled with laughter,

and our tongue with singing...Psa 126:2

Pictures, Everyone!

2009-03-03T04:19:00.000-08:00

:: Howdy! ::

:: with cousin Pieter ::

:: Our future medical scholar ::

A merry heart maketh a cheerful countenance:

Pro 15:13

Testing days coming soon...

2009-02-25T15:20:00.000-08:00

Gerad continues to grow and develop. He is a well-built chunky boy and all you want to do is squeeze him and squeeze him some more. He is now over 17 pounds.
Last night momma had a book party and he wasn't so sure with all those ladies ooh'ing and aah'ing over him. Today he was happy because the party turned out real good and his mom was allowed to get lots of free books. Nice ones! =)

Further testing is scheduled for March the 11 and 12th. On the 11th, pre-catherization day, he will be in the hospital for 1/2 a day for tests such as bloodwork, ECG and x-ray. On the 12th a camera will be inserted through his groan to take a better look at his heart. From here the doctors will determine when his next surgery will take place.

What is cardiac catheterization?

Cardiac catheterization is a diagnostic procedure in which a long thin tube called a catheter is placed in a blood vessel and then guided to the heart. The catheter may be inserted into either arteries or veins, depending on the information needed, in either an arm or leg. A "dye" is injected through the catheter to determine and measure precisely what the heart looks like at the present.:: rolling ~a whole new way of seeing the world round about ::

After several days of not dirtying his diaper, Daddy Marv was concerned it was going to come out through his pant legs when he showed signs of doing his Big Job soon!!!

That outta do the trick!!

On the grow

2009-02-18T09:54:00.000-08:00

:: getting ready to go, go, go! ::

:: growing out of his cradle ::

Then were there brought unto him little children,

that He should put his hands on them, and pray...

Mat 19:13

John Deere Boy

2009-02-07T17:16:00.000-08:00

~Cousins~

2009-02-07T08:37:00.000-08:00

:: Gesina and Gerad :::: Friends ::

:: right Gerad? ::
:: I love you ::

Gerad is now 16 pounds, heavier than Gesina and only an inch shorter. He is bound to beat her in that area too!

More smiles from Gerad!

2009-01-29T05:03:00.000-08:00

:: in zijn doop pakje ::

After a bout of pneumonia, he is doing better again. He gave momma Hannie some very rough days and nights, but now that he is on the mend she is catching up on sleep. Yesterday she gave him his very disliked medicine and it took awhile to get it all in. After he drank his bottle empty momma was pleased....until he spit up;

and out came....only the medicine!

On monday they went for another check-up and Liz, the head nurse was very pleased with him. He weighs 15.5 lbs now, so he is a growing boy! A chunk of an adorable boy!

No...tante Bou is NOT hybernating...!

2009-01-22T09:42:00.000-08:00

::He is sooo cute...! ::

:: He likes his tractor... ::

:: and the tractor likes him...! ::

:: A picture for the record: he does sleep in his cozy little bed, too! ::

Last time Gerad was weighed at an appointment, he was 14.1 lbs. Hannie weighed him on the scale at home since then and it looks like he may be over 15 lbs. now!

Enjoy the pictures!

The Love of Grandparents...

2009-01-05T18:54:00.000-08:00

Een lekker flesje van Oma...

Opa's pet...

en ook een flesje van Opa...njam, njam

en samen met Opa een visje bakken! Mmm

For he established a testimony in Jacob, and appointed a law in Israel, which he commanded our fathers, that they should make them known to their children: That the generation to come might know them, even the children which should be born; who should arise and declare them to their children: That they might set their hope in God, and not forget the works of God, but keep his commandments:
Psa 78:5-7

Blood Pressure Good!

2008-12-22T18:38:00.000-08:00

Today was check up day and Opa Bos took Momma Hannie and Gerad in to see the Pediatric Cardiologist since it was quite the winter weather. Gerad's blood pressure was perfectly normal, but they still wanted to do a blood test. They had a very hard time drawing blood from his veins so they had to take it out drop by drop from his heal. Poor Gerad! One day he was sitting quite contently in his chair when he started to bring forth sounds from his diaper, not once, not twice, but lots of times. Momma Hannie suspected a big mess, but not quite this big!

Ahh, the joys of motherhood...!

She.....worketh willingly with her hands
Pro 31:13

More pictures to enjoy!

2008-12-19T09:59:00.000-08:00

:: This week Hannie had just told the doctor that he doesn't really like his soother, but she put it in his mouth anyways since they were checking his blood pressure (goes very tight) and he took it so nicely. He likes to surprise his mommy like that! ::

:: sleep, sweet boy ::

Come one, come all!

2008-12-19T04:52:00.000-08:00

:: These pictures are here to provoke everyone to come to Ontario and see this adorable little boy for themselves! Who first? ::

Stay tuned...more pictures to come!!

The light of the eyes rejoiceth the heart...

Pro 15:30

Pictures of our Little Man!

2008-12-15T18:27:00.000-08:00

Hello Everyone!

Today Gerad went for his check up and he now weighs 12.11 lb!!! And measuring a tall 60.8cm! Everything with his heart is good although his blood pressure was measuring high, so he gets blood work done next week to see what is causing it. High blood pressure and his treasured heart may not be a good mix!

He loves playing in his play pen with all his bright colored toys. The train quilt he is laying on is made by an elderly lady from the nursing home where Hannie used to work.

Pray that his blood pressure goes down.

And we know that all things work together for good

to them that

love God.

Romans 8:28

Check Up Next Week!

2008-12-09T04:30:00.000-08:00

Today was the day Gerad needed to be in Toronto for an echo and a check-up. But, yesterday they called, and if Marvin and Hannie were comfortable with not coming they could wait till next week and then just go for the check up in London! So, that is what they are doing!

It's an 'all-over' good sign, and I am thankful!

Here is Daddy Marvin with a fussy little Gerad when he was still being tube-fed. After an exhausting night, this is how Momma Hannie found then in the morning.

Growing...

2008-12-06T14:31:00.000-08:00

Sleeping,

but well aware we were taking a picture of him!

Next week Marv and Hannie will be taking him to Toronto again for further testing. He is growing and getting more and more into a routine; falling asleep easier and being more content. When a photographer came this week to take his picture, he didn't smile his big broad smile until the photogragher was out the door!

Somehow I am not surprised...

He is just very smart!

The first step in child training is to decide what you want your children to become and then become that very person yourself. ~Micheal Pearl

Daddy's Boy!

2008-11-27T13:27:00.000-08:00

Someone To Thank!

2008-11-26T09:25:00.000-08:00

When Gerad came into the office he went on a monitor to check his heart rate and oxygen level and that was good. Liz (the headnurse ofpediatric cardiology) listened and everything, including shunt, sounded clear. Everything looked good. Gerad mightv'e been overtired and Liz wasn't worried but did say it was good that Hannie and Dad took him in. Hannie says: 'He REALLY was not waking tho.'
Marvin is on his way home now too.

Thanks for praying.

Someone to Thank ~Geraldine Koehn

There is Someone who daily my needs doth supply,

These things don't just happen, there's Someone on high.

'Tis His mercy and grace that allows me to live;

He deserves all the thanks I can give.

Refrain~I have Someone to thank for ev'ry new day,

I have Someone to thank for the gifts on life's way.

He's the One who expects and One who accepts

All the thanks that I feel each day.

There are many who do not believe in the Lord,

Say He never existed to create the world.

Oh, how empty their hearts and how lonely their days

With no Jesus to thank and to praise.

Refrain~ I have Someone to thank for ev'ry new day,

I have Someone to thank for the gifts on life's way.

He's the One who expects and One who accepts

All the thanks that I feel TODAY!

Praises!

2008-11-26T08:38:00.000-08:00

The Lord has heard our Prayer! Opa Bos, Hannie and dear Gerad are on the way HOME!

I have not talked to Hannie yet, but will update more later!

God is Good!

Lift Gerad up in Prayer!

2008-11-26T07:40:00.002-08:00

Opa Bos, momma Hannie are on their way to London with baby Gerad. Gerad is breathing, but not waking up. He woke up when she bathed him this morning, but he doesn't seem to wake up completely. Other than that he cried alot last night (although I don't know how he was throughout the night), this is all I know. Hannie had a hard time getting a hold of Marvin at work, therefore Opa Bos is taking them in.

Pray with us:

Dear Heavenly Father, you already know what we are praying for, but we ask you to keep our dear sweet Gerad safe. Help him to wake up soon, give the doctors wisdom when they see him and may You guide them. Lord, you know there are many sick children and people in that hospital, so we ask you to help the health care workers to make the right decisions who needs medical attention the first. Keep Hannie strong and be with Marvin. We Pray he already knows about the situation and that he is on his way. Keep him safe on the roads and bring him quickly to be with Hannie. Lord, they need your strength at this very moment. Help them to see Who you are and that they stand in need of you, now and always. You are the Giver of Life, and the Sustainer. Show your Love, Your Power, Your Compassion. Be with the grandparents too, strengthen them. We thank You that You are only a prayer away. Watch over the boy we love so very much. Heal him, we ask, in Jesus' most Holy Name, Amen.

Rejoicing in hope; patient in tribulation; continuing instant in prayer.

Romans 12:12

(will update as I know more...)

Beary Good

2008-11-25T04:18:00.000-08:00

'psst....hey Gerad...want to come play with me?'

'aw, Gerad...come on...wake up! Let's play! Please?'

Sigh. 'You really are sleepy, aren't you?'

'oh, goody! You woke up! Come, sit close to me. I love you, Gerad!'

' Still a bit sleepy?? Well, I will sit here with you then

and dream about the day you and I can play for real.'

Monday was appointment day in Toronto for Gerad, as it is every two weeks. He weighs 10.12 pounds now! Next visit they will do bloodwork to check his enox level and do an echo. He is a beary sweet boy!

Come unto me,

all ye that labour and are heavy laden,

and I will give you rest.
Take my yoke upon you, and learn of me;

for I am meek and lowly in heart:

and ye shall find rest unto your souls.
Mat 11:28,29

Enjoy Everyone!

2008-11-21T12:23:00.000-08:00

a picture says a thousand words!

He can smile, he can smile!!! A little nap, mom!

Twee hartediefjes...Gerad met nichtje Gesina

New Picture!

2008-11-19T17:39:00.000-08:00

Gerad has a ‘sticky’ to his name! He is often called Gerad the Grunter by who else but his mom and dad! He grunts when they change him, he grunts when he sleeps, he grunts when they snuggle and he grunts, grunts, grunts. An oh-so-cute grunt!

Last week at his weekly checkup he was 9.8 lbs. Yesterday he was a good 10.2 lbs! He is doing good with only getting his injection twice a day to keep his shunt open. He smiles and smiles a lot. Even at his mom. It is a very cute broad smile. He still spits up and sometimes a lot, but overal he does better all the time.

All along the way the company Marvin works for has been very supportive, allowing as much time off as he needed and so on. This week Marvin and Hannie received a large gift of money from a fundraiser campaign the company had organized and a beautiful blanket for Gerad with his name and date of birth in a big heart shape. The blessings didn’t stop there. You can imagine the cell phone bill that skyrocketed with all the phone calls made during their hospital stay. But God again was gracious, and it took one phone call from Marvin to the phone company asking if something could be done and they dropped the charge to a mere amount!!!!

God is able to make all grace abound toward you.

2 Corinthians 9:8

The Boy That Stole Our Hearts

2008-11-08T14:06:00.000-08:00

Sleeping peacefully...

The dishes are done, the floors swept, and the laundry caught up. Mother Hannie is happy because Gerad is being soo happy and nice and lief. Now they are both happy. And because they both are happy, Dad Marvin is happy too. Now we have one very happy family on Middle Town Line.

Gerad is getting into a routine and you can tell he is gaining weight now too! He seems to have his nights and days in the correct order and feedings are going good and he is not crying so much anymore. Last night on the way to a wedding reception he cried and cried and Han and Marv didn't think it would be a good night. But he surprised them by going to sleep quickly for a l-o-n-g stretch and they were able to enjoy the evening.

Our Miracle Boy...

An adorable boy with big eyes, cute nose, kissable lips and a dimple when he smiles! Yes, he is smiling! To his dad, of course, because he just can't wait to trail along behind him to help with the fall clean-up of the yard. When I visited this afternoon, it was not hard to notice the LOVE his parents have for him. The appreciation and thanksgiving that flows when they hold him, stroke his cheek yet another time, shower him with kisses or look into his beautiful big eyes. They are in awe and Dad Marvin calls him a Miracle. Yes, a miracle and true evidence that God cares for us, loves us, answers prayer and gives us what we ask for. Even when our requests are great and our petitions and desires be endless. But, the greater our need, the more He can show us how mighty He is, how strong, how powerful and how compassionate!

O that men would praise the Lord for His goodness.

Psalm 107:8

You mean he cries??

2008-11-06T04:29:00.000-08:00

Gerad drinks,

Gerad cries,

Gerad sleeps,

and Momma Hannie sighs a sigh of relief.

For a precious moment....

Yes, according to Hannie, he cries, and cries alot. On tuesday they went for another checkup in Toronto and he behaved so well the doctor had a hard time believing that he cries so much. Hannie thought: "Je kuunnen ut wel, jongetjen..."

He did not gain any weight, but that could also be due to the fact he was weighed on two differnt scales, one in London, the other in Toronto. They are experimenting different things to see what makes him cry, but other than that his stats (blood pressure, heart rate, oxygen level) showed better than a week ago.

He is still very cute, and being his aunt, I can say his cry is a very soft , adorable sound.

Mother Hannie doesn't always think so.

Weeping may endure for a night,

but joy cometh in the morning.

Psalm 30:5

Come Visit...!

2008-10-31T09:06:00.000-07:00

First, you have to wash your hands...

then you may hold and touch and snuggle baby Gerad!

This is his feeding tube. Where mom Hannie is holding the tube,
that is how far it was into his body!

Gerad and one of his friends!

What sacred trust! What holy thrill!

To hold my newborn, soft and still-

A soul to live eternally;

Dear Lord, we humbly look to Thee.

No more tubes...

2008-10-30T04:48:00.000-07:00

Yes, our little Gerad has no more tubes or wires attached! After a visit with the pediatric cardiologist in London, Daddy Marvin got the go-ahead to take the feeding tube out. That means he is drinking everything he needs from the bottle!!!!

I hope to post some pictures of Gerad soon, now that he is looking like the real him! Today Home Care is coming again for a visit, just a checkup and to answer any questions Han and Marv may have.

Hannie is getting the taste of having a newborn baby~she is tired!!!! =)
But I am glad she is, for it means she is at home and adjusting to the normal life of having a new baby! She, and Marv too, have alot of memories of the past weeks to simply digest, to laugh about, smile, to appreciate, to cry over, be thankful for and to just stand still and be in awe! They are very happy to be home! It really helps alot that willing hands are blessing them with meals. What would we do without friends and family!!!

And let the peace of God rule in your hearts...

and be ye thankful

Colossians 3:15

Home, Sweet Home!

2008-10-25T20:59:00.000-07:00

My heart is overwhelmed with gratitude and thanksgiving to see my dear nephew Home, alert, awake, looking around and acting like any other baby! How special he is!!!

If only you could all see for yourself how adorable he is!

Today his bottle feeding was good, with no leftovers to go through his feeding tube! He is such a joy to see. I was able to hold him for the first time, feed him a little, cuddle him and change his tiny diaper. Oh, and did I say he is adorable?

For great is the LORD, and greatly to be praised:

1Ch 16:25

THIS IS THE DAY...

2008-10-24T17:37:00.000-07:00

...that the Lord has made,
we will greatly rejoice, and be glad in it...

because...

Marvin, Hannie and Gerad are

coming HOME!!!!!!

To Gerad, from 'tutte' Grie

2008-10-24T04:32:00.000-07:00

Dear Gerad,

Hoger dan de blauwe luchten
en de sterretjes van goud,
woont de Vader in de Hemel
die van alle kinderen houd.
Ook voor zieke kinderen zorgt Hij
kent je tranen kent je pijn.
Ja, voor groten en voor kleinen
wil de Heer een helper zijn.
Daarom vragen wij eerbiedig,
vouwen wij de handjes saam,
Heer die altijd naar ons luistert
neem ook ons gebedje aan, Amen.

Love 'tutte'Grie, ome Jan en de kinderen

A Day Closer to Coming HOME!!

2008-10-23T18:12:00.000-07:00

This picture was taken on Monday evening.

Oh, the joy of holding your own little one in your arms! Marvin and Hannie can’t get enough! Today Opa and Oma Bos visited and there was Hannie, strolling around with her dear baby Gerad in her arms! Later on she came into the room and walked over to the crib, but baby Gerad was not there….but laying safely and contently in his fathers arms in the chair!

Feeding is still difficult, but the doctor said this afternoon that that is quite normal for a baby like Gerad and it could take up to four weeks before that is better.
If all goes like it is, they might be coming home the beginning of next week!!!! Gerad will come home with his feeding tube and tonight Marvin was being taught how to put a feeding tube into Gerad’s nose. For the first while after they come home, there will be a nurse that will come every day to see how things are going, gradually reducing the times she comes. Until his next surgery alot can change, but they want to wait it out as long as possible so Gerad can mature and grow stronger!

What shall I render unto the LORD

for all his benefits toward me?

I will take the cup of salvation,

and call upon the name of the LORD.

Psa 116:12,13

Quick update!!!

2008-10-22T19:39:00.000-07:00

Gerad is off his monitors!!!
Now Marvin and Hannie can walk around with him freely!!!
Every hour a nurse comes in to check his vitals, and today he also had his discharge echo done, of which we do not know the results from, though. Drinking is still not the way it should, but we hope our prayers may be answered soon!

Drink, Gerad, drink!

2008-10-22T11:14:00.000-07:00

Everything is going quite well, however Gerad still has difficulty drinking his bottle. He does take it and drinks till he gets too tired. The rest then enters his system through his feeding tube. Han and Marv have to feed him slowly and stop with the bottle when he falls asleep or when he starts coughing etc., just so he doesn’t get too tired and his heart doesn’t have to work too hard.

God Bless Marvin and Hannie as they have been learning to give Gerad his blood thinner injection. He needs it twice a day until his second surgery so his shunt will not clot.

The only other medication Gerad is getting is for reflux, so he doesn’t gag so much when they are feeding him.

Dear little Gerad, we are praying for you that you quickly learn to like drinking from your bottle! Be strong and keep trying! We will also pray that your mommy and daddy stay strong as they learn to give you your injections to keep your little heart healthy and working! Know that you are very much loved!!!

Simply trusting every day,
Trusting through a stormy way;
Even when our faith is small,
Trusting Jesus-that is all.

Singing if our way is clear,
Praying if the path is drear;
If in danger, for Him call,
Trusting Jesus-that is all.

Sleep Well Tonight Gerad (and parents!!)

2008-10-21T18:21:00.000-07:00

Nothing has really changed, other than Gerad drinking from his bottle three times today! What he didn't drink went through his feeding tube, but him drinking from the bottle is still good progress!

He does have the nights and days mixed up, sleeping soundly during the day and keeping his parents awake during the night! (me just thinks baby Gerad needs a little talk with his tante Bou!)

Tea Michele visited Gerad last night with uncle Albert.

For health and healing, Thank You, Lord,

Who values each soul's worth;

Whate'er You send, we humbly say,

Thy will be done on earth.

A Special Note!!

2008-10-20T14:14:00.000-07:00

Hi, How are you doing? I am doing ok.

Saturday was moving day for me!!! I went all the wayto the fourth floor. I have my own room that I get to share with my dad and mom! Just like I would be doing if I was at home. Mom and dad get to do lots of stuff to me now like diaper changes, washing, feeding through my tube, making me more comfortable and lots more things.

Yesterday nurse Alaina took my pacing wires out. They were there to hook up to a pace-maker if I would need one. The wires went through my skin and the ends sat right on top of my heart. But now they are out and I am thankful that they did not have to be put to use.

I was very fussy saturday night. We didn't get much sleep because i kept crying and throwing up, and I did NOT want the bottle. Doctors accessed me and they decided that maybe I was getting my belly filled too fast so now I get my milk through the tube again but its hooked up to a pump that regulates how fast the milk goes into my tummy and I have been feeling much better already.

I stopped getting the bottle yesterday because I was not drinking and it took too much energy out of me trying so hard and that burns too many calories and I need all the calories that I can get!This afternoon a lady will talk to mom and dad and try to slowly bottle feed me again and give some tips to help mom and dad feed me.

Also some BIG news!!!! All the medication lines are out! All I still have is the PICC line and that is so the nurses can give me medications if I need it! I also still have a feeding tube that goes in through my nose and then to my belly. One thing I don't like about that (and mom doesn't either) is that now I get a needle two times a day that I get blood thinner through, so that my shunt doesn't clot.

There are still sticky things on my chest to monitor my heart and the red light (that you have seen on pictures) is still on my foot or hand to monitor the oxygen level in my blood. So as you can read a lot has changed for me! But so far the doctors and nurses are happy with how I am doing, and as soon as i start feeding better my mom and dad can start thinking about taking me home. That's all for now!

Love Gerad Neels

Parental Love and Duties =)

2008-10-18T16:28:00.000-07:00

Little Gerad is learning and been drinking from a bottle fairly well! Last feeding he drank 20 cc and then was too sleepy to drink the remaining 5 cc so that went through his feeding tube. Every three hours he does receive 3 cc more milk, so build up his intake.

He has been moved to fourth floor into a parent room where Marv and Hannie have a shower/bath room and a bed and cot in the room! They enjoy feeding, burping, bathing, diaper changing, dressing when he needs it: and hugging and snuggling Gerad simply when they want to!

Marv said he has a good cry: evidence of a healing throat and a good pair of lungs!

Marv and Hannie, here is Ceasar!

Our boys got to play with him and Buddy a bit yesterday!

'My God is so BIG,

So strong and so mightly

there's nothing my God cannot do...'

This is the Lord's Doing...

2008-10-17T10:44:00.000-07:00

Gerad and his 'new look'...

Gerad and his new room...

and Gerad in his new bed!

I will praise thee;

for I am fearfully and wonderfully made:

marvellous are thy works;

and that my soul knoweth right well.

Psa 139:14

The Wonder of It All!

2008-10-16T19:59:00.000-07:00

I am very blessed to bring you a good report once again!

Gerad is entirely breathing on his own, he is down to two medications, one for his heart, and morphine. (morphine being down to 18 mg from 50 mg last week!) He receives two different liquids foods besides the 9 cc of breastmilk through his feeding tube.

Although he does not like being handled, Marv and Hannie enjoy holding him and can't get enough! They are aiding their son to practise drinking by dipping a soother or drink nipple into milk and letting him suck, but he has a hard time of getting the idea to suck, swallow, breathe. Considering he is our little fighter, he will get through this. One step at a time! We love you, Gerad!

Because all parent-patient rooms were full up on fourth floor, they hope to have one available tomorrow!

What is man, that thou art mindful of him?

Hebrew 2:6

Thank you!

2008-10-16T09:29:00.000-07:00

Hello Everyone!
Just another Big THANK YOU for all the loving support
that we have been getting!!! Words can not tell how touching it all is. Thanks
for all the meals, phone calls, cards, visits, thoughts and Prayers! We
got to hold Gerad last night! Those were precious moments!!! Gerad loves to be
bundled up tightly and cuddled! Also a big THANK YOU to Tante Bou for all
the time and effort you have spent on Gerad's blog up till now! As you can see
from the comments, everyone is very thankful that they can follow along day by
day. Also thank you very much to everyone that has left comments and sent
us e-mails the last few weeks. It really helps us to get through this difficult
time. Take care everyone!Love Marv, Hannie and Gerad!!!

To Hold and to Love

2008-10-15T17:40:00.001-07:00

After supper Hannie was exhausted, so she went for a sleep. When she awoke, she went out to find Marvin and lo and behold, he was sitting in a rocking chair holding Gerad in his ARMS! She texted me with excitement and that it was HER TURN NEXT! Marvin said it was like being a dad again!

What a blessing!

How sweet to hold a newborn baby

and feel the pride and joy he gives;

But greater still the calm assurance

This child can face uncertain days because He lives!

More of God's Goodness!

2008-10-15T17:40:00.000-07:00

Things have been improving so quickly these last few days! From 12 different medications a few days ago to only 4 today! His chest drain is out now too, as is his oxygen tube in his nostrils that they put in just to aid him a bit. His I.V. in his right foot is out as is his catheter. Now he 'only' has his PICC line yet, two I.V.'s into each groan and his feeding tube.

And the most exciting part is that Marv and Hannie might get to hold him TONIGHT yet!!!

Opa and Oma Neels hope to go back home come saterday, so they might even be able to hold him too yet before they go!!!

Usually a heart patient goes into a 'step down' room (with four other patients and one nurse)before being moved into a parent room on fourth floor, but most likely by the end of the week Marvin and his family will be on the fourth floor, since he came off the heart medication today and so bypass the 'step down' room! Isn't God Good?

So far Marvin and Hannie have still been able to stay at the Childrens Hospital which means being right down the hall from Gerad instead of a few city blocks away during the nights! Yes, God is very Good!

This is the LORD'S doing;

it is marvellous in our eyes.

Psa 118:23

Another day, another step forward!!!

2008-10-15T08:08:00.000-07:00

Not only did Gerad get moved into the room next door, but he has a real crib now, which makes him look small.

He was wearing his touque (hat) again. The nurse said that his cathedar is out now and maybe his chest drain will come out today too! His oxygen level was a bit low overnight so they did have to insert a temporary oxygen tube in his nostrils just till he can maintain his own levels by himself. Other than that the nurses are happy with him, they said he had a good night and seems comfortable.
So, if all goes well, maybe within a few days they can go up to the fourth floor, which means a room with just mom, dad and baby!!!! And where holding and hugging is greatly encouraged!!!
They continue to lower his medications to slowly wean him off.

Behold,

the Lord's hand is not shortened,

that it cannot save;

neither His ear heavy,

that it cannot hear.

Isaiah 59:1

The ventilator is OUT!

2008-10-14T16:30:00.000-07:00

More beads~mainly from his surgery.

Praises to our Lord and King! The breathing tube is OUT! Marv said he has been washed and looks so shiny and pink now! So far he is doing good without it!

Now little Gerad has a hood. It is like a square, see-through box over his head that gets oxygen and humid air pumped into it so Gerad can breath that to help with the healing of his throat. Several times he has wanted to cry, but just can’t yet, and mostly takes up to a few days after the ventilator is out before he can utter sound again.

Makes me just want to scoot over to Toronto to go see him with less tubes attached to him, but hopefully we will have many chances yet to see him that way! God is Good! Obviously coming off the ventilater is a huge step, but in the mean time it is also common for it to be re-inserted again. Let’s pray that won’t need to happen and he can continue to heal and recuperate, and the sooner Hannie and Marvin can SNUGGLE their dear, huggable, precious, gorgeous, cute, charming, adorable, beloved, all together sweet little bundle of delight!

Mwah. <---a kiss from us, dear Gerad!

And the LORD, he it is that doth go before thee;

he will be with thee, he will not fail thee,

neither forsake thee:

fear not, neither be dismayed.

Deuteronomy 31:8

More Steps Ahead

2008-10-13T19:30:00.000-07:00

Gerad is slowly being weaned off medications. He no longer has medication for blood pressure and they are reducing the medicine to keep his heart pumping. Do you notice the touch of care on Gerad's little cheek? A nurse cut that out of 'tape' to hold the tubes in place. Yesterday he was wearing a fish!
His abdomen is swollen and they took an x-ray, but saw nothing. He now gets 9 cc breastmilk~ of which there is a bountiful supply~ every three hours! He has two tubes, one that drains his chest and another going into his abdomen (not sure what for), but they clamped the one going into his stomach today to see if he would tolerate without it and he seemed to do well. Once that tube can be taken out, he can come off the ventilator!!! Maybe tomorrow!

At times he is quite awake, but while I was with him this afternoon, he was sleeping contently and seemed to like laying on his side. He looks so much more comfy that way!

He had a slight temperature so the nurse placed a bag of ice on his head to cool him off. He didn’t seem to mind at all!

Here is nurse Kim doing bloodwork, filling his 'bottle' with milk, among other things.

We have thought, O God,

on Your lovingkindness.

Psalms 48:9

Hannie's birthday!

2008-10-13T18:31:00.000-07:00

Happy 22nd Birthday Hannie!

Here she is 'reading' her bouquet of hearts

Tante Hannie and Hendrik looking at the picture album from Gerad.

Visiting and celebrating in the hospital waiting room.

The proud parents of dear little Gerad!

Besides us visiting, Both Opa's and Oma's came, Grietje and Johan came and Evelyn and her little girl drove 'all the way' to Toronto. This morning Hannie felt very special when Marvin presented her with a card with the little footprints of Gerad!

The LORD is good to all:

and his tender mercies are over all his works.

Psa 145:9

Things Looking Better!

2008-10-11T18:46:00.000-07:00

I spoke with Marvin earlier and things are going better! Gerad's heart rate was down, his blood pressure up and they want to start weaning him off some medication throughout the tonight. He is able to lay on his sides, they are letting him breath more on his own, and he still does NOT like it when they handle him or change his diapers!

Speaking of diapers: he is filling his quite good! He was wetting them so much that it was lowering his blood pressure, causing them to put him on medication to up his blood pressure.

The doctors are pleased with Gerad's progress the last two days. May he continue to improve and let us not slack in praying for him and his parents. Hannie hopes to have her 22 nd birthday on Monday; Bless her with a note via email! She would be very pleased!

So far Marvin and Hannie are still staying at the hospital. They have a room just off the main waiting area for the Critical Care Unit and just steps away from Gerad's room. It has only the basics, but they are thankful for it!

This morning two sisters from Marvin, Kathryn and Evelyn, arrived from B.C.! They hope to stay till next week. Opa and Oma Neels are still here too and hope to go home with their daughters.
....the bond of FAMILY!

I hope you all have a very Blessed Sunday and Thanksgiving. Thanksgiving is good, but thanksliving is better!

Being enriched in every thing to all bountifulness,

which causeth through us thanksgiving to God.

2Co 9:11

He's is doing OK!

2008-10-10T20:03:00.000-07:00

We are glad you stopped by for a little update....

from our dear little Gerad:

~At 6:30 he was looking better!
~they are doing bloodwork every 4 hours now, instead of every hour!
~he is coming off of his muscle relaxant so he is starting to move and open his eyes!

What a Friend we have in Jesus

Who with all our sorrows share

What a privilege to carry

Everything to God in Prayer!

Poem

2008-10-10T11:15:00.000-07:00

Our Father knows what's best for us,

So why should we complain ...

We always want the sunshine,

But He knows there must be rain.

We love the sound of laughter

And the merriment of cheer;

But our hearts would lose their tenderness

If we never shed a tear.

Our Father tests us often

With suffering and with sorrow;

He tests us, not to punish us,

But to help us meet "tomorrow."

For growing trees are strengthened

When they withstand the storm;

And the sharp cut of the chisel

Gives the marble grace and form.

God never hurts us needlessly,

And He never wastes our pain;

For every loss He sends to us

Is followed by rich gain.

And when we count the blessings

That God has so freely sent;

We will find no cause for murmuring

And no time to lament.

For Our Father loves His children,

And to Him all things are plain;

So He never sends us "pleasure"

When the "soul's deep need is pain."

So whenever we are troubled,

And when everything goes wrong,

It is just God working in us

To make ‘our spirits strong.’

~ Helen Steiner Rice ~

God's Grace

2008-10-10T09:10:00.000-07:00

The nurses love his kissable lips. Who wouldn't?

MARVIN WROTE:

Another night has gone by and we still have are beautiful son in our midst. Things have gone so smoothly the last week you soon forget how fragile life is. But as we stood at his bedside this morning we realize our sick little boy again was graciously spared. We don't deserve this but we try to be truly thankful for these blessings. As I sat with Gerad yesterday things really took a turn for the worse. Gerad's blood pressure was dropping at a alarming rate and his heart tried to compromise by beating faster till it reached a much too high pace of 185 bpm. The nurse didn't wait long to call doctors, surgeons and other cardiac professionals to Gerads bedside. As I stood in the background watching them try to decide what to do, you really feel the bond we have with our son. Our son is laying there struggling for his life and these men have to make decisions that may help him. Then you truly learn what it is to "pray without ceasing". But once again Gerad received strength to pull through. And although it was a few hours till everyone was satisfied again, his blood pressure slowly climbed back up to an acceptable level and his blood tests also showed a better nutrient content.

Gerad has been stable all night, his blood pressure has been good, his heart rate is still a little high but the doctors say this is acceptable considering what Gerad has gone through yesterday. So we are very thankful they didn't have to open his chest again because that would have been a big step backwards. So once again so far so good.

Marvin

Unto thee, O God, do we give thanks,
unto thee do we give thanks:
for that thy name is near thy wondrous works declare.
Psa 75:1

Anyone that would like to
send Marvin and Hannie an email
may email to: hannie_bos@hotmail.com

Prayer Request!!!

2008-10-09T07:17:00.002-07:00

Do you believe God and His Word when he says:

Be careful for nothing;
but in every thing BY PRAYER and supplication with thanksgiving
let your requests be made known unto God.

And the peace of God, which passeth all understanding,
shall keep your hearts and minds through Christ Jesus.

Php 4:6,7

This morning the doctors closed little Gerad's chest but at 1:00 this afternoon his numbers were not good at all causing hypertension, possibly due to his heart not having so much room now, since his chest is closed. The doctors were ready to open it again, but thankfully his vital signs started to show better numbers!

He received more blood, calcium and they are minimizing his fluid intake so he won't retain too much fluid which is common after closing of his chest. He now has two strings attached to his chest to give his heart more room. If you go back to the post from last saterday you can see a blue string going through the white sterile cloth and up, hanging from his heating lamp. He now has two strings. They are keeping him under complete sedation.

Pray for little Gerad! And for Marvin and Hannie!

One step at a time

2008-10-09T07:02:00.000-07:00

Each time Marv and Hannie want to see Gerad, they need to call the nurses to see if they can come in, just to make sure they are not in the middle of doing something, such as working on him or doing a shift change. This morning they called in and they had already started the procedure of closing his chest!! That is SUCH a blessing; now that can start to heal!!! One step at a time. The Nurse said yesterday Gerad would retain fluid again (but not as much) and will have to lose it again. For the rest he was doing good yesterday.

He did have an episode that really scared them. Hannie was just standing behind his bed talking to a nurse when he suddenly started breathing quick short breaths. He had the hiccups and it must have made him very uncomfortable. He squirmed and tried to cry but couldn't because of the tubes down his throat and then he turned blue and hot. After a few minutes he calmed down, although those minutes seemed more like an hour. Marvin and Hannie were relieved but thankful that it was not something more serious! With the possibility of taking steps backwards, he continues to take little steps forward.

See these little feet? They look so sweet and adorable, don't they? Well, he is causing mischief with them allready! He was laying there, awake and kicking away with these little feet when one of his tubes got stuck between his toes and as he stretched, plop, out he pulled the tube! That is when he fell soundly asleep and the nurse had a hard time explaining that Gerad himself had caused the trouble and she didn't do it: "HE did it, he did it...!" she repeated, as Gerad lay sleeping like a good little boy!!!

He gets lots of 'oohs and ahhhs' on his toes:

"Look at those toes...!"

"wow, he could poke my eyes out with those...!"

"with feet like that he'll be climbing trees in no time...!"

But even the very hairs of your head are all numbered.

Fear not therefore: ye are of more value than many sparrows.

Luk 12:7

One Week Old Today!

2008-10-08T04:56:00.000-07:00

Dear little Gerad,

Remember when I visited you last night? When I talked to you, you kicked with your little legs and even opened your eyes a bit as to see who I was. Even among all the tubes and drains and wires, I could definitely see how cute you are! The nurses think so too, and that is why they gave you a smiley face bead on your string! Did you kick off your blanket again after we left? =)
Your Daddy and Mommy are staying so strong through this all. They long so greatly to hold you, but can’t yet because of your open chest. I am praying that you recover in leaps and bounds and we all can hold you and you can snuggle up against us! You are a little, strong fighter, you know!
Tante Grie and your cousin Johan came from Holland yesterday too! Your mom was happy for that and I hope they can visit you as often as possible.
God Bless you dear Gerad!

Love and gentle hugs, tante Bou

Gerad's Bravery Heart Beads

2008-10-07T20:20:00.000-07:00

Bead Colour Legend

Biopsy Yellow Donut
Bone Marrow Aspirate Green Sparkle
Bone Marrow Transplant Large Plastic Heart
CCU Admission Iridescent Raspberry
Central Line/Port/Pic Line Insertion Small Gold Heart
Clinic Visit Royal Blue
Completion of Treatment Happy Face Daisy
Course of Chemotherapy Multi Coloured
Dressing Changes White
Emergency/Ambulance/Unusual Occurance Gold
Hair Loss/Thinning Wooden Face
Inpatient Admission Orange
Intra Muscular Injection Mauve
Isolation Multi Coloured Bear
IV Start Florescent Green
Lumbar Puncture Fushia
Morphine Infusion Pink Wooden Round
Port Access Sapphire Crow
Radiation/Simulation Glow In The Dark
Satellite Visit Cars & Trains Neon
Stem/Bone Marrow Harvest/Dialysis Small Heart
Surgery Crystal
Tests/Scans Stars
TPN Yellow Wooden
Transfusion Red
Tube Insertion (eg. Catheter, Chest, NG) Clear
WOW/Special Accomplishment/Recognition Special Bead

Blessings, blessings, blessings...

2008-10-07T06:41:00.000-07:00

....manifold blessings!

Our little Gerad is continuing to take steps forward to healing. Last night he was able to do away with 1 liter of fluid by himself! His head arms and legs are looking back to normal. Obviously he has lost weight and Daddy Marvin tells me his legs look like chicken legs! What a blessing he was 8 pounds at birth!

The doctors and nurses are looking at closing his chest by thursday and everything looks good. He is constantly under close monitering to keep everything is check, but he is responding well to everything.

Marvin and Hannie have, up to this far, been able to stay and sleep at the Childrens Hospital and that is another blessing! This morning they heard a "code blue" call and it frightened them out of their beds. Thankfully is was not little Gerad, but it was someone else's child. A child that also has loving parents, grandparents and extended family! Pray for them, as you pray for Gerad, Marvin and Hannie!

As I was thinking this morning about all the Blessings we have received, I started to make a mental list. From Gerad's steps forward to recovery, the Lord's sustaining of Marvin and Hannie, the loving touch and care of nurses, the wisdom of doctors, the love of friends, the presence of grandparents who are at the hospital as much as possible, phones and computers to keep up-to-date and stay in touch, answered prayers, safe travels up and down to Toronto, the breath of life, and the list goes on...!

Just only considering how God has made our bodies so fearfully and so wonderfully, that doctors can reconstruct little tiny hearts and then aid the body to recovery, makes us stand in awe at our Maker! How he has made bodies, even tiny baby ones, to handle so much stress and still be able to fight and hang on and recuperate! How fearfully we are made!

And it shall be to ME a name of joy,

a praise and an honour before all the nations of the earth,

which shall hear all the good that I do unto them:

and they shall fear and tremble for all the goodness

and for all the prosperity that I procure unto it.

Jer 33:9

To Gerad, love Mommy and Daddy

2008-10-06T09:16:00.000-07:00

DEAR PRECIOUS LITTLE GERAD!!!

(For when you read this when you are older...)

Know that we love you VERY, VERY much! We are very thankful that we are blessed with a boy like you as our son! can't wait to take you home baby Gerad! it's amazing how a bundle like you can touch us SO deeply! Get well soon!!! We cant wait to hold you again!
Love you LOTS and more!!!!
Love your daddy and mommy
ps. Be Strong

Gerad, our little, strong fighter!

2008-10-06T08:56:00.000-07:00

Precious little Gerad is doing OK! His swelling is coming down and he is showing all good signs! His eyes are not so puffy and swollen as before and he is trying to open them by sqwinting! The swelling is very common in children after heart surgery, but he is learning again to handle the fluid, and his output is more than his input. He is still on medication for the swelling to urine better and getting his kidneys so start doing their job again.
He is on 3cc of breastmilk every 3 hours and digesting it!

No more muscle relaxants, but they had to up his morphine as he was moving too much yesterday, and he needed to calm down. He is maintaining his blood pressure, although is heart rate goes up when you touch him, and he shows a little temper, according to Daddy Marv!

Yesterday Hannie was able to do some mothering, cleaning little Gerad's eyes with sterile wipes and cleaning his mouth.

As one whom his mother comforteth, so will I comfort you;

Isa 66:13

No News just yet

2008-10-06T07:19:00.000-07:00

We have not heard how Precious little Gerad is doing. About an hour ago, Marv and Hannie hadn't seen him yet, and I am sure they will call with an update when they have seen their little boy. I will let you know when I know something! In the meantime...here is

Momma Hannie and her little boy!

Be careful for nothing;

but in every thing BY PRAYER and supplication with thanksgiving

let your requests be made known unto God.
And the peace of God, which passeth all understanding,

shall keep your hearts and minds through Christ Jesus.
Php 4:6,7

Precious little Gerad!

2008-10-04T16:24:00.000-07:00

Marvin just called for an update and the nurses are happy about how he is doing. Lieve Gerad is stable, still critical, but doing everything he is expected to do. Last night when his sugar levels went up, it was actually a good sign as his body knew something was happening, creating more sugar, so he would have enough energy to fight.

He is on a ventilator because his breathing has to stay regular since his chest is still open and not to cause any extra stress on his chest area. He will be on the ventilator for at least the next two days.

He was on medication to control his blood pressure, but that now has come off and he is maintaining his blood pressure very well.

His color is pinky and that’s good as it means he is getting enough oxygen!

Ye that fear the LORD,

trust in the LORD: he is their help and their shield.
Psa 115:11

Little Steps Forward

2008-10-04T12:52:00.000-07:00

Gerad is taking little steps forward in his recovery. During last night they did have to give him insulin as his sugar level went a little high, although it was nothing serious. He will be in critical care until tomorrow night, or Monday, but he is stable, and taking little steps forward. During surgery he had two pacemakers, afterward he had one, and now his heart is pumping completely on its own.

Ome Klaas and Tante Linda visited him and Marv and Hannie today and took pictures with my camera, but they are not back yet, so I don’t have up-to-date pictures to share. It is sad to see him all hooked up, they said, and the nurses are encouraging Marv and Hannie to keep touching him and talking to him. ‘…he knows who mommy and daddy are.’

On a lighter note, the nurse told them to not come back until they have bought some booties for Gerad, some more toys, and another blanket. So that is what they are going to do now. I hope they will get him the BEST ones they can find, don’t you?

At least until Monday, Marv and Hannie have a room at the same hospital as Gerad, but then they get a room at the Ronald McDonald house which is about a 20 min walk from the Hospital for Sick Children.

Bravery Heart Beads.

Each little patient is given a necklace with their name on it. As Gerad
undergoes difficult treatments, testing or surgery he receives special
plastic or wooden beads, called Bravery Heart Beads, to commemorate these milestones.
Eventually he can wear his beads proudly as a necklace or
wristband, or attached it to toys, IV poles and maybe for now, his parents! =).
The necklace documents and honors the experience of
all his treatments, enabling him to later tell his unique story in a tangible,
visual way. It will be a precious keepsakes that is viewed as a medal or badge
of courage. Before his surgery he had about 8 or 10, and after his surgery he received 13 more.

Be strong, little Gerad! We love you VERY MUCH and continue to pray for you! A BIG ((( HUG ))) from us all!

I will both lay me down in peace, and sleep:

for thou, Lord, only makest me dwell in safety.

Psalm 4:8

Clarification!!

2008-10-03T20:22:00.000-07:00

For the record, Marvin and Hannie's baby's name is

Gerad Johannes!

Gerad after Opa Neels and Johannes after Hannie's only uncle on her mothers side

GERAD in sign language:

Quick update:

~they have been able to see him, or what you can see of him, as there are lots of wires and tubes attached to his small body.

~they are keeping him sedated,

~his vitals are showing good readings!

A good name is rather to be chosen than great riches,

and loving favour rather than silver and gold.

Pro 22:1

He is out of surgery!

2008-10-03T12:19:00.000-07:00

A sound heart is the life of the flesh...Psalm 14:30a

Little mr Gerad is out of surgery!! As far as the docters, they were able to do the work they needed to do and Gerad’s corrected heart is pumping blood!!!!!!!!

Marvin and Hannie should be able to see him in about an hour as he is recovering now. They are leaving his chest ‘open’ so that as the heart swells, it can do so with more room. This is normal for baby’s with heart surgery and they usually close it in 5 days. (Right now they have it sealed with bandages)
He is still in critical care, but we are very relieved and thankful he made it through safely! God is Good!

Wait on the LORD: be of good courage,

and he shall strengthen thine heart:

wait, I say, on the LORD.

Psa 27:14

Update

2008-10-03T09:19:00.000-07:00

A nurse just spoke with Marvin and surgery is proceeding well. It is taking a little longer to get new lines into his veins, as they are small and also from earlier access through these veins. But, Praise the Lord, so far it has gone well.
We can expect another update in about three hours. (3:00 pm Ontario time)

Thou wilt keep him in perfect peace whose mind is stayed on thee:

because he trusteth in Thee. Isaiah 26:3

Day 3: Surgery Day

2008-10-03T04:23:00.000-07:00

Prayer:

Our Heavenly Father, we come before Thee today to thank you for the many blessings you have bestowed upon us. For the Blessing of a new little life Thou hast given into the hands of Marvin and Hannie. Be with them today as they give their dear beloved child into the hands of the surgeons so they may reconstruct little Gerad's heart. We ask you to guide the doctors hands skillfully and bless the work of their hands. Bless all the nurses and doctors and health care workers for their diligence and care to so many people who need care and are hurting. Reward them for their unselfish love and care. Be with little Gerad, keep Him in the the hollow of Thy Hand, for Thou hast promised in Thy Word that thou healeth the broken in heart and bindeth up their wounds. Keep him strong thoughout today, tomorrow and the days to come. Send Thy Peace into the hearts of Marvin, Hannie, grandparents, uncles, aunts, friends and loved ones, that we may know and trust that Thou hast a great purpose in the life of little Gerad. That Thy ways are not our ways, and Thy way is Perfect. It will be a long day for us, but help us to stay peaceful as go about our daily duties prayerfully and practise keeping our thoughts in check. Strengthen the hearts of Marvin and Hannie expecially, and surround them with Your Love and tender care. Help Hannie further recover from the labour delivery and restore her, putting a song in her heart for the blessing of being a mother!
This, we humbly ask, in the name of our Lord Jesus Christ, AMEN!

PICC went well

2008-10-02T16:27:00.000-07:00

This afternoon at 2:00 they inserted a PICC line into Gerad's arm and it went very well, taking an hour to perform. (sometimes this can take up to 5 hours)

A peripherally-inserted central catheter is a long, soft, hollow tube that is
inserted through the skin and into a vein in the arm. The tip of the catheter
sits in a large vein above the right upper chamber of the heart.

The PICC line provides access to the
bloodstream. It can remain in place for long-term use. The PICC is used to
administer medications quickly to the heart.
A local anaesthetic is used to "freeze" the area on the arm
where the PICC line is inserted.

Today both Opa's and Oma's traveled the long distance to Toronto. Opa Bos decided to return home while Opa and Oma Neels and Oma Bos are staying in a hotel overnight.

During the nights when Hannie and Marvin would make their way across the street to the other hospital, they would notice the homeless people sleeping on the streets! How blessed we are to have a home and nice warm beds to sleep on!

In every thing give thanks:

for this is the will of God in Christ Jesus concerning you. 1Th 5:18

Tomorrow will be a hard day for Gerad as they will be doing the Norwood Procedure. The surgeon had yet to meet with Marvin and Hannie, so we don't yet know what time the surgery will be.

Marvin says Gerad is still cute!

FROM the end of the earth will I cry unto thee,

when my heart is overwhelmed: lead me to the rock that is higher than I.

Psalm 61:2

Norwood Procedure

2008-10-02T04:42:00.000-07:00

Norwood Procedure A complex surgical procedure used for hypoplastic
left-heart syndrome (and similar variants) where reconstruction of the absent or
small aorta is accomplished by using the patient's own pulmonary artery. This
allows unobstructed blood flow to be delivered to the body. As part of the
Norwood procedure, the wall between the upper chambers of the heart is removed
(atrial septectomy), and a small Gore-tex? tube (shunt) is inserted from the
aorta to the pulmonary arteries.